After I turned 50 I got the ubiquitous call for breast screening and dutifully went along. It hurt like hell. When I got the latest summons, three years later, it a came with a leaflet called NHS Breast Screening, helping you decide. This time round I’ve chosen not to attend. My maternal grandmother died of breast cancer so opting-out of a routine mammogram was not easy. This post explores why I made my decision.
Finding a lump in my breast
It’s important to give you some background. In 1993, when I was 30, I had a lump removed from my left breast. It was not malignant but back then if you had a substantial lump they whipped it out anyway. The theory was that it could mask something else underneath. When I was 42 I had a biopsy on a second lump, which was also benign, but by this time medical opinion had changed and they left it alone. I had sensitive breasts with lumps that would come and go with my menstrual cycle. After menopause these lumps disappeared and now my breasts are soft and squishy with no pain.
Anyone who has sat waiting for a biopsy result will recognise the feeling of rising panic as you read the posters around the clinic walls. You naturally prepare yourself for bad news. Luckily, for me, the news was good but for many women it is not. One in seven women in the UK will develop breast cancer in their lifetime. Although survival statistics are good there are still around 1000 deaths from breast cancer every month in the UK. Catching any cancer early reduces the risk of mortality. So why on earth did I choose not to have free NHS breast screening?
Breast screening studies
This is the paragraph in the NHS booklet that made me stop and think:
If you’ve been alarmed at the increased number of women you know who’ve had treatment for breast cancer this paragraph makes sense. Breast screening produces a significant number of women diagnosed with duct carcinoma in situ (DCIS) – something that was rarely found before screening began. DCIS may never develop into a life threatening cancer but once discovered it is treated just-in-case. Like my lump back in 1993. Only this time treatment could include a mastectomy and debilitating chemo or radio therapy. I decided to do a bit more digging.
Surgical oncologist, Professor Michael Baum, one of the architects of the original breast screening programme, argued in 2016 that ‘mammograms do more harm than good’. His thesis, which you can read in the Hippocratic Post describes screening for breast cancer as ‘a short history of a big mistake’. It is his view that ‘too many healthy women are harmed by breast cancer screening’. He campaigned for the new leaflet which now reads as in invitation rather than a summons to breast screening units.
An article in The Guardian ‘should I have a mammogram?’ reported on a massive 25-year Canadian study. 89,835 women between 40 and 59 were randomly assigned either 5 annual mammograms or taught to examine their breasts themselves. In the mammography group 3,250 women developed breast cancer and 3,133 in the self-examination group. 500 died in the breast screening group and 505 in the self-examination group. In other words it’s just too close to call.
The Pros and Cons of breast screening
This isn’t science (you can find that all over the internet if you need it) it’s my personal for and against list made as simple as possible:
1 Screening gives you peace of mind when you get the all-clear.
2 Breast cancer caught early is more treatable and the survival rate is better.
1 It hurts – your breast is squashed flat in a vice.
2 Mammograms expose fragile breast tissue to radiation which can cause cancer.
3 There are false positives which mean you return for further mammograms causing more potential damage and stress.
4 Duct carcinoma in situ might never form into a life threatening cancer but if found it will be treated as if it is.
5 Some fast growing and aggressive cancers can develop between mammograms and might not be discovered until it is too late.
6 Breast screening starts at 50 but many women develop breast cancer before this.
There is no doubt that breast screening increases awareness and that is a good thing. We are long past the days when women suffered in silence and were too afraid to go to their GP. But for many women who develop breast cancer in their 40s or earlier the summons for a mammogram comes far too late. In short the mammogram catches some but not all cancers. I would argue that what we really need is education at teen level. Women should routinely examine their breasts throughout their lives and know how, when and where to seek help.
If you want to know how to check your own breasts for signs of cancer here is a very good video first shown on ITV’s This Morning.
I’ve been checking my breasts for decades and that is how I came to have both my previous lumps treated. Self-examination has worked for me so I’ve decided not to let anyone flatten or radiate my breasts again. At the moment my breasts have never felt better, but if I do notice a problem I will ask for either an ultrasound or MRI scan, both of which are safer and more accurate than a mammogram.
Since first writing this post I did find another lump. My doctor responded very quickly and I was sent to the breast clinic where I was given an ultrasound followed by a biospy. The lump was benign. I cannot stress enough how important it is to get any lumps or changes in breast tissue inspected urgently. It could save your life.
My decision to self-screen is mine alone and I don’t advocate it for anyone else – every woman needs to make up her own mind. The big news is that there is a choice and we owe it to ourselves to become informed enough to make it.
With love, Avril x